THIS IS A NOT FOR PROFIT WEBSITE! THE SOLE PURPOSE OF THIS SITE IS TO
INFORM AND SUPPORT WORLDWIDE POLIO SURVIVORS AND ANYONE INTERESTED IN
"POLIO SURVIVORS IN THE 21ST CENTURY"
Medical Disclaimer: All visitors of this website need to be aware this page and others on this website are to inform ONLY. These pages DO NOT replace any advice or health information from a health professional. I, James Davis, am NOT a medical professional in any way. This website is based on my experience and knowledge of Polio and Post-Polio Syndrome. I AM a POLIO SURVIVOR (see note at bottom of this page) and my website is dedicated to other polio survivors throughout the world.
Advertising: As you will find throughout the website THIS IS A NON-PROFIT WEBSITE! This website does not host any form of advertising. Links and banners leading to books and other polio related sites are for your informational purpose only and I DO NOT CONSIDER THESE TO BE ADs but only resources to help our post-polio survivors community.
THIS IS NOT A FOR PROFIT WEBSITE AND IS TO BE USED FOR INFORMATIONAL PURPOSES ONLY!
President Franklin D. Roosevelt
"Franklin’s illness proved a blessing in disguise, for it gave him strength and courage he had not had before. He had to think out the fundamentals of living and learn the greatest of all lessons-infinite patience and never-ending persistence.”
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Short Story from a Polio Survivor
Kathy made a post on a FaceBook Post-Polio Support Group. I was so impressed I asked her permission to publish it here on Polio Survivors in the 21st Century and was relieved she gave her approval. I hope as you read her story you will visualize it with a positive and uplifting spirit. It is this high spirit, we as polio survivors, have viewed our lives.
Thank you Kathy for your permission to share this with the visitors of this website.
Excerpt From Wikipedia: "Mr. Sandman" (sometimes rendered as "Mister Sandman") is a popular song written by Pat Ballard which was published in 1954 and first recorded in May of that year by Vaughn Monroe & His Orchestra and later that same year by the Chordettes.
By Kathy Fezza Galletly
Little something I wrote about my introduction into the world of polio.
“Mr. Sandman bring me a dream make him the cutest that I've ever seen.
Give him two lips like roses in clover then tell him that his lonely nights are over.”
What bittersweet memories that song brings back to me.
When I was a small child, we didn't have much money so the day my father came home with a used record player and a smoking jacket that was given to him by a friend was a huge event. What a treasure we thought we had. When daddy put the record player on the kitchen table my brother Jeff and I sat and stared at it with amazement. We couldn't believe our eyes. My mom stopped making dinner and sat next to us and stared in disbelief. “Guess what else I have” as he handed my mother the bag “A brand new record, a happy, fun record one we could dance to”
Every night after dinner we would eagerly wait for Daddy to put on his smoking jacket. What a smoking jacket that was! It was black silk with gold swirled embroidery throughout the jacket; it had a black belt which tied around his waist and a pocket that held his pack of Camels. My Mom had said it gave him an air of refinement. Once he put on his smoking jacket he then walked over to the record player and turned it on, then he would grab my Mom and dance with her while I danced with Jeff. We would switch partners, I would stand on Daddy’s feet as he would swirl me around the room. What fun, what laughter. This went on for weeks, every night after dinner until one night when Daddy went to dance with me my Mom told him to be very careful I had been complaining that my neck and head hurt
Little did we know there was an invisible dancing partner lurking in our apartment, it was a cruel and crippling dancing partner who chose mostly children to dance with. Its name was Polio.
YouTubes regarding information on Post-Polio Syndrome.
You Tube 1: Dr. Richard L. Bruno discusses the ten commandments for post-polio survivors and post-polio syndrome.
You Tube 2: Dr. Stephen de Graaff answers questions about post-polio and post-polio syndrome (PPS).
Editorial & Comments
by James Davis
July 15, 2016
Working on updating current material. Please be patient I have gotten a bit behind on technology since my retirement.
Thank you Sincerely for visiting!
Creator and Editor of "Polio Survivors in the 21st Century"
Posted on May 10, 2013 - If you can help her in her mission, please email me with whatever information you can provide and I will forward it to her.
"I am on a mission! My husband contracted polio when he was 2 y.o., in 1955. He spent a great deal of time at the Shriners Hospital in Shreveport, having 3 surgical procedures and months of in-hospital time. His last stay there was when he was 15/16, around 1968/69, when he had a surgery to elongate his hip muscles and give him more mobility in his right leg (where the polio had attacked). His name is Stephen White.
As he grows older, he continues to express a deep desire to reconnect with the friends that he made during his stays at Shriners, especially his last one. I have tried social media, but have had no luck making contact with anyone. I have sent requests to Shriners, but no response. Steve will never forget their faces and their first names, but without a last name, I have no way of trying to find these people."
Can you help? Is there a site that you know of where you can post who you’re looking for and share your info?
Thank you so much for your time and assistance,
I just wrote a poem titled as Polio and want to share it with you.
My Poem “Polio” depicts the voice of Polio Survivors, who is facing countless difficulties in all walks of life.
Let's wipe out polio together and support every polio victim for a better tomorrow. Though, the best way to escape polio is to get Polio drops.
We want a polio-free World.
The Post-Polio Institute and
International Centre for Polio Education
Dr. Richard L. Bruno website states.......
"For almost thirty years, Dr. Richard L. Bruno has studied and treated nearly 6,000 polio survivors and is the world's leading expert on Post-Polio Sequela (PPS)."
Personal Opinion: Dr. Richard Bruno, as far as I know, could very well be the last remaining advocate for today's Survivors of Polio. It was his hard work that helped pass an SSDI Rule to allow Polio Survivors to become eligable for Disability on a much faster basis. His contribution to Polio Survivors is so much I doubt it could all be listed. He actively maintains the "International Centre For Polio Education" and likely answers thousands of emails from Polio Survivors. I would have to say there are two men I admire greatly for their support for victims of the Polio Virus and that is President Franklin D. Roosevelt and Dr. Richard L. Bruno.
I highly recommend Dr. Bruno's book, "The Polio Paradox" to ALL polio survivors and or people who have family members and friends who were affected by one of the three types of polio. Medical professionals, Medical Universities, etc should read this book to give them a better understanding of this virus and how to treat baby boomers for PPS.
Click the book below and it will take you to Amazon dot com giving you more detail. You can purchase either the hardback, paperback or a Kindle e-book version. It would be a great resource for family members, friends of polio survivors and medical professionals. Please take a minute to read Amazon's reviews as it appears some people found the book helpful others did not. As I said, personally for me it was very helpful in understanding how polio virus was selective when it affected certain body parts. Also, how the neurons (damaged and over used) eventually came to help cause PPS in later years.
The "Polio Survivors Handbook" ebook has the
suggested donation amount of $5.50 .
If interested please click here or the book to your left to be taken to
PLEASE NOTE: This is not a paid ad nor was it requested by anyone associated with the above/below mentioned websites. This is only for information purposes based on the editor's (James Davis) personal experience with the helpfulness of this (these) product(s).
PolioToday.org is constantly updated and appears to have many members....including me!
My personal advise is this site is a must for all Polio Survivors!
As survivors we are fortunate PolioToday.org was created for our benefit.
PolioToday.org is published by the Salk Institute for Biological Studies. The website is designed to raise awareness of post-polio syndrome and to be a resource for polio survivors. Dr. Jonas Salk, who developed the first safe and effective polio vaccine, founded the Salk Institute in 1960. (Description from PolioToday.org)
Video shared from You Tube on January 10, 2015
Visit PolioToday.org to see more video's of life stories from polio survivors.
If you know of sites like Polio Today please let me know so I can share the link with other Survivors.
THANKS FOR STOPPING BY!
If you want to know more about me and my occasional thoughts feel free to visit my blog. Currently due to the time I am spending working on this site I have not updated my Blog in awhile.
"Polio Survivors in the 21st Century" was created and is maintained by James Davis, a survivor of polio. Stricken at age three and a half in October 1959, in Northeast Georgia, United States of America and treated at The Warm Springs Foundation Hospital for three months. The residuals resulted in severe atrophy of the legs and required lifetime use of full length Kafo Leg Braces. The PPS and the aging process is now causing debilitating physical problems from the neck down and has triggered mental and psychological issues forcing early retirement.
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